Get up, get out and get going to the Walk for PNH! Whether you’re a jock or not, you can turn out and help us find a cure for bone marrow failure disease.
Exercise is even more SATISFYING when you do it for charity!
The only road to a cure is RESEARCH, so get moving!
Join our campaign that gives patients HOPE for a healthier tomorrow!
Learn more about the race and walk and how you can help.
Register as an individual walker, virtual walker, start a team, or join an existing team. Simply click on the Registration tab above and follow the instructions. So lace up your walking shoes and join us to raise awareness and funds for education, information resources and research.
And if you can't join us in person, please consider signing up anyway and raising funds for the cause as a 'Virtual Walker'.
Join family and friends walking and running
Join us - register yourself, build a team, become a virtual walker or make a contribution to support our efforts.
The success of this event depends on our volunteers!
Join us for a meal.
|Date:||Sunday, September 17th|
|Time:||7:30 am - 9:30 am|
|Location:||Hotel Belleclaire, Broadway Room (10th floor)|
|250 W 77th Street, New York, NY 10024|
|Agenda:||Join us for a special breakfast with Dr. David Araten from NYU who will be giving an informal presentation. Dr. Araten will also have one of his patients discuss their journey with PNH. There will be plenty of time for questions and answers with Dr. Araten.|
AAMDSIF has a negotiated rate of $255/night (tax not included) at Hotel Belleclaire. To make your reservation, please call (929) 257-0120 and mention AAMDSIF PNH Breakfast. You can also make your reservation online by using this link and entering our group code: AAMDSIF. This special rate is valid until Monday, August 21st.
If you have any questions about the breakfast, please contact Becca Scott at firstname.lastname@example.org or (301) 279-7202 x117.
Learn how we help patients and families living with bone marrow failure disease.
The Aplastic Anemia and MDS International Foundation (AAMDSIF) is the world's leading nonprofit health organization for patients and families living with aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH) and related bone marrow failure diseases.
The Foundation’s strength stems from the multi-faceted community it developed over 30+ years. AAMDSIF serves and educates the patient population and health professionals and provides financial support to clinical researchers searching for better treatments and cures.
For 11 consecutive years, AAMDSIF has earned a coveted 4-star rating from Charity Navigator, the highest rating awarded by America’s largest independent charity evaluator. Only 1 percent of all American charities achieve this recognition for sound fiscal management and commitment to accountability and transparency.